Sickle cell disease (SCD) resources

Get the support you need, discover treatment options and find resources to help you navigate your transplant journey. You can also learn more about SCD and how a blood or marrow transplant (BMT) works for SCD.

In partnership with the sickle cell disease (SCD) community, we've created an easy-to-use packet with information for patients and their families, including:

Transplant for sickle cell disease

Free resources for sickle cell warriors

How your friends and family could be the cure for sickle cell warriors (PDF)

Not sure where to go with questions about your transplant journey or who to ask? We're here to guide you and your loved ones from diagnosis through recovery. We'll listen and help you find answers. All our programs and resources are free.

Our Peer Connect program can connect you with a trained volunteer who’s been there. No matter where you are in the transplant process, past recipients and caregivers like you are available to talk by phone or email, to listen and share tips based on their own experience.

PACES offers you and your loved ones free one-on-one support from a social worker. We can help you manage and cope with illness, treatment, the blood and marrow transplant (BMT) process and survivorship. This telephone-based support program offers flexible options, including regular phone calls with a social worker, or one-time calls to discuss options for support in your local community.

The Financial Assistance Program may help you overcome financial barriers to transplant. NMDP offers grants to help eligible patients cover costs pre- and post-transplant including things like copays, dental work, family typing, food, gas and housing. Our patient navigators can tell you if you're eligible.

For eligible warriors, we may be able to provide financial assistance to preserve your fertility before transplant. We aim to help warriors build their family post-transplant.

For many sickle cell warriors, treatment through clinical trials provides hope and a potential cure. But they’re not always easy to find or understand. We can help you or your loved one find and join clinical trials.

Hear real life stories of inspiration from warriors, caregivers and the community as they share their experiences.

Explore the stories of how sickle cell disease and other life-threatening blood diseases impact the Black community. You’ll hear from patients, blood stem cell donors, caregivers, doctors and supporters. Find Black Blood Heals wherever you listen to podcasts or watch online.